Titusville – August 05, 2013—Children and young adults, who have parents battling ALS (a.k.a. Lou Gehrig’s Disease), are invited, along with their families, to a free fun day at Shady Brook Farms, 931 Stony Hill Road, Yardley, PA 19067 Morrisville, P.A. from 11am- 2pm on September 27th.
The free event includes lunch, music, corn maze, crafts, pig races and games and so much more. The Fleming family, owners of Shady Brook Farms, are donating the grounds free of charge that day for the good cause. Children will also have the chance to meet and connect with other children who have a parent with ALS. Interested ALS families can register now until Sept. 1st at hopelovescompany@gmail.com
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Hope Loves Company was formed a few years ago by Jodi O’Donnell-Ames to support the children of ALS patients in the tri-state area and beyond. Mrs. O’Donnell-Ames lost her husband Kevin to ALS in 2001.
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ALS is a neuromuscular disease that causes damage to the nerve cells controlling voluntary muscle movement. Patients lose the ability to control muscle functions. Early symptoms usually include tripping, dropping things, abnormal fatigue of the arms and/or legs, slurred speech, muscle cramps and twitches. Late ALS can include paralysis and the need for ventilation. Currently there is no known cause or cure for ALS. There are currently 30,000 patients in the United States who live with ALS and many of them have children.
In 2003, Mrs. O’Donnell-Ames married Warren Ames and became a step-mother to Nora and Adam Ames, who lost also lost their biological mother Tina Singer Ames to ALS in 2000.
“While raising three children who have lost a parent to ALS, I witnessed how difficult it was for them to get the right kind of help. I then vowed to help other children once my children were in college,” explained O’Donnell-Ames on forming HLC.
ALS has united the O’Donnell-Ames family in hope and in love. Hope Loves Company was formed in memory of Kevin O’Donnell and Tina Singer Ames. For more information, go to www.hopelovescompany.com or view the HLC video http://www.youtube.com/watch?v=p2pzXRbx_vs.
